At least 47 individuals in Fiji are diagnosed with haemophilia, a genetic disorder that requires continuous management and access to vital treatments. While the Fiji Haemophilia Foundation suggests that the number of cases could exceed 100, only 33 patients are officially registered, revealing a significant issue of underdiagnosis and restricted access to healthcare.
Assistant Minister for Health, Penioni Ravunawa, has indicated that patients with haemophilia can receive free medications for blood clotting, including Recombinant Factor VIII, at major hospitals and select health centers. Such treatments are essential in averting serious complications like internal bleeding and joint damage, which are common among those affected by the condition.
The most prevalent type of haemophilia in Fiji is Haemophilia A, which is caused by a deficiency of clotting protein Factor VIII. Notably, Ravunawa noted that around one-third of diagnosed cases occur without any family history, highlighting the need for greater public awareness and early testing.
Challenges in diagnosis persist, primarily due to the necessity of sending test samples overseas for confirmation, which can delay treatment further. To address these concerns, the Ministry is collaborating with the Fiji Haemophilia Foundation to enhance local testing capabilities and provide adequate support to patients. Additionally, refresher training for emergency department staff will be implemented to ensure preparedness for bleeding episodes.
As World Haemophilia Day approaches on April 17, Ravunawa has emphasized the importance of continued collaboration to raise awareness, improve diagnostic processes, and ensure that individuals living with haemophilia receive the care they require.
This concerted effort reflects a hopeful outlook for patients in Fiji, as initiatives aimed at improving awareness and access to treatment may lead to better health outcomes and quality of life for those affected by haemophilia. By fostering an understanding of the condition and encouraging proactive health-seeking behaviors, the community can better support individuals navigating this complex disorder.
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